Ryan Ballou, 23, and his family are making strides to find a cure for Duchenne Muscular Dystrophy (DMD), the sickness which has plagued Ballou considering that age five.DMD is a sickness that attacks the muscular tissues of the body, making them ineffective and eventually top to death. DMD impacts boys, despite the actuality that girls can carry the gene, and those afflicted ordinarily do not reside previous their past due teens or early adulthood, according to kidshealth.org.
Ballou and his family started a charity referred to as Ballou Skies to raise recognition for DMD in hopes of prolonging his existence and eventually acquiring a cure.
“We volunteered in the Muscular Dystrophy Association (MDA) and desired to do more, so 4 or five many years ago my father had the idea of Ballou Skies charity,” Ballou said.BallouSkies donates 100 percent of its proceeds to Ohio express researchers.
“We observed about the study OSU was doing with MRI technologies to scan the heart to attempt to prolong the life of people impacted with Muscular Dystrophy. We believed the study was too crucial to pass up,” Ballou said.
The income Ballou Skies raised assists the researchers in their experimental endeavors.
“They (the prescription drugs tested) are used for end-stage heart failure and, when tested around the mice, have assisted improve all muscle functions within the mice,” mentioned Jill Rafael-Fortney, a single of two researchers executing these experiments to find treatments and cures for MD.
Ballou Skies has raised roughly $27,000 within the previous year to donate towards study at OSU, Ballou said.”It compensated for the study and all study requires money,” Rafael-Fortney said.
To raise recognition and study funds, the charity sells its all-natural peanut butter and its triathlon team competes within the Ballou Skies uniform.
Jeremy Cornman, 31, is in his 12th season of triathlons considering that 2000.
He started competing for the Ballou Skies team in summer 2009 when Ty Ballou, Ryan’s dad and a fellow tri-athlete, approached him about representing Ballou Skies, Cornman said.
“I think of Ryan and use him as inspiration when points get tough and it’s nice to become able to give back and use tris being a platform to do that,” Cornman said.
Triathlons can represent not only a physical pursuit that those impacted by MD cannot pursue, but also a selfless act when competing under Ballou Skies.
“It could be a selfish pursuit, but it’s nice to place the selfless element into it by raising recognition and it’s definitely a good feeling,” Cornman said.Although monetary donations have slowed, Ryan mentioned the triathlon team has continued to gain interest.
“The triathlon team began with 4 or five athletes and we have about 15 now,” Ryan said.
Ballou Skies has larger objectives in thoughts for the future.
“It’s kind of cool now within the last year-and-a-half of involvement and how it is increasing exponentially,” Cornman said. “We desire to allow it to be nationally recognized.”
Nothing particularly new is within the performs for this year, Ryan said, but they are generally available to new ideas.
“We are going to become as resourceful as feasible this year. excellent points have happened and will carry on to happen,” Cornman said.Although the Ballous reside in Pennsylvania, they want Ballou Skies to have a pursuing coast to coast.
“Our principal concentrate is to obtain far more people involved anyplace throughout the country and gain far more recognition (for MD),” Ryan said.